Coal company provides ₹16 cr to worker for daughter’s SMA remedy injection


South Jap Coalfields Restricted has passed over a cheque of 16 crore to an worker whose 2-year-old daughter is affected by a unprecedented ailment known as Spinal Muscular Atrophy and calls for an imported injection known as Zolgensma of that quantity, an professional mentioned on Saturday. 

The cheque was once passed over on Friday Satish Kumar Ravi, who works as an overman, mentioned SECL Dipka challenge mining common supervisor Shashank Shekhar Dewangan. 

Ravi’s daughter, Shristi Rani, is affected by SMA, a genetic dysfunction wherein an individual can not keep watch over the motion of muscle groups because of lack of nerve cells within the spinal twine and mind stem, and Zolgensma injection, which prices 16 crore and must be imported from the US of The usa, is needed as a part of the remedy, Dewangan mentioned. 

The kid was once recognized with SMA in December ultimate yr, and she or he is on moveable ventilator enhance at her house in Dipka these days after present process remedy stints at AIIMS Delhi and SECL-empanelled Apollo Medical institution in Bilaspur.

Coal India Restricted (CIL), of which SECL is part, has set an exemplary instance via appearing that workers and their households are the true wealth of an status quo and saving their lives at any value is the firstly activity, he added. 

This tale has been revealed from a cord company feed with out adjustments to the textual content.

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